celebrities with bicuspid aortic valve

Best Valentine's Day Restaurant Specials 2023. My surgeon basically said, Lets get you back to living your life. Cardiologists always say take it easy. The problem is I have developed an aneurysm on my ascending aorta of 44mm. If youre uncertain about any advice youve received about exercise, you might try to seek a second opinion that may provide some extra confidence about exercise. Search Heart Hospitals Apparently this can work better than Losartan? I applaud your efforts to search out information to help you decide on a course of action. For the last 7-8 years I didnt do too much sport (kids, family). Monica Lewinsky: 25 Randoms on the 25th Anniversary of the Bill Clinton Calamity. Unfortunately his cardiologist took that from him so he focused his energy and talent on basketball. I was having chest pain and flew to Thailand to see what the issues were and they found I had GERD and Esophagitis. There are certainly individuals with BAV who never have trouble down the line. Bethesda Conference reports), even though there is no certain link between sports and the aorta enlargement. Its weird because sometimes when Im resting I can feel a little weird fluttering.. In March 2018 he underwent emergency surgery to have this replacement valve replaced. Went through the process of antibiotic therapy and. I am perfectly happy to stick to the 10km max distance for races, but my key concern is that if I do run some faster training sessions then I might have a sudden death. Mayo Clinic Q and A: Treatment and management of bicuspid aortic valve His cardiologist said, i am sure he can play a full game with new issues but I have to go with new guidelines and indirectly left it up to me to make the decision which moved him to mild /moderate and put right at the Borderline. Current guidelines suggest no restrictions on activity for athletes with BAV who have no stenosis/regurgitation and who have a normal sized aorta. Looking forward to hearing your thoughts. Normal great vessel size Seems unlikely to me that there would be lingering effects that would make an EKG or chest x-ray abnormal. On said it wont make a real difference, the other said oh yes, that was like a blockage, you will feel the difference. Thank you so much for your clear explanations. Hector V. Ive never heard about a mechanical aortic valve becoming loose because of high HR. It has allowed me to do the thing I enjoy doing in life. Hey has been physically active with restrictions of no contact sports, and no isometric exercise. Males are about twice as . They are able to see my son this Friday, which i am much more comfortable with! Aortic stenosis has been reported to occur in as many as 72 percent of adults with a congenital bicuspid aortic valve, with peak incidence occurring in the 5th and 6th decades of life. My cardiologist has told me that, based on how my heart sounds, he doesnt think hell ever have to operate on me. Okay, thats greatbut I left feeling uncomfortable with the diagnosis. Moderately dilated aortic root (max 46mm), mild ascending aortic dilatation. No enlargement of aorta or any other problems. To help correct the regurgitation, the cusps of the patients valve leaflets can be tailored, with the valve leaflets left in place. I feel fantastic and have already been walking the streets of Cleveland enjoying your amazing statues. Use of this site constitutes acceptance of our User Agreement and Privacy Policy and Cookie Statement and Your California Privacy Rights. Anyway, I will continue with running as much as I can, and now I have an excuse for my lousy performance. Given my age and activity level, do you think it would be beneficial, or even prudent, to explore a valve repair surgery as you described above? Would you recommend taking beta-blockers at this stage? I was disappointed [when I was diagnosed]. My heart seems to heal, so that speaks well for my future.. And lastly, the degree of healing in the remaining (unoperated) aorta probably has a big impact on the potential risk. Questions currently remain about how long such repairs will last and whether patients might require re-operation at some point in the future. Have you considered meeting with a heart surgeon to talk about the situation? On March 30, 2018, we learned that Arnold Schwarzengger required a second heart surgery. I am riding my 3 rd anual Belgian Waffle Ride today. I just want to know what things I will see change so that I dont look past the change in my valve and miss my window to get the valve replaced. When the aorta is enlarged in the setting of BAV, there are a couple possibilities: the valve needs to be replacedor it doesnt: Valve repair. Questions about Bicuspid Aortic Valve!! : r/AskDocs I am an amateur runner, I do not participate in competitions. An echocardiogram last June revealed a function BAV. Yoga is not included in the classification of sports that is commonly used, but I suspect that yoga would have low to moderate static and dynamic components. My cardiologist has advised that while marathon running is out, shorter runs (up to 6-8 miles) and pilates are both fine for now. Does lifting weights up to 100 pounds and being cleared for push-ups, pull-ups, all cardio, etc., sound reasonable? You are correct that we worry about the influence of such activities on the enlarged aorta in those with BAV. Athletes should have detailed discussion with their doctors about any prudent limitations to exercise after operation and settle on a mutually agreeable plan. In some cases a particular arrhythmia that is responsible for your feelings of palpitations or light-headedness could be identified.and options for treatment could be presented. As I mentioned in previous comment my recovery is going great. Answers to your questions. We are trying to work out a way for her to continue to play. Routine endocarditis prophylaxis is . You can see my post above, from 26th of april. Yes, I am aware of the work by Dr. Dietz. It has served me well enabling me to live the vigorous, full, complete life you are all so familiar with. Guidelines specifically for athletes come from the Proceedings of the 36th Bethesda Conference in 2005. I have normal aortic size, mildly dilated aortic sinus (39 cm), and trace aortic regurg. Thats always the concern with new techniques with limited follow-up data. This content can also be viewed on the site it originates from. Dear Doctor, Very helpful. I am playing basketball I am doing 100m and 200m and swimming . At the age of 12, she had a procedure to widen her valve as her heart condition continued to have an impact. It's the most common type of congenital heart disease (heart defect that's present at birth) and often goes unnoticed until later in life. I can not be on anticoagulant medications on the fire department. Danny. Arnold Schwarzenegger opted against a mechanical valve replacement and chose a tissue valve because he felt a mechanical valve might limit his physical activity and capacity to exercise. Still it puzzles me that for you as for me it seems to degrade more after the diagnosis for a condition we have since birth. The surgery involved a replacement heart valve made from a transplanted tissue sourced from his pulmonic valve. He will be rechecked with an echo, BNP blood test & MRI every 6 months. Or its the result of the cumulative effect of the aortic and mitral valve leakage? Jeff. Could the changes in my LV be the result of the physiological, not the pathological change? Glad to hear that youre recovering, Zdenko. It can also lead to aortic stenosis , and is more . My problem is a perpetual fear and worry about having this diagnosis and having to someday undergo open heart surgery. 2) He can lead a normal life & can continue his training with regular echocardiography control (once in a year). My mother passed away last May following her second AVR. I am followed every 2 years. Nwankwo Kanu (@papilokanu), the Olympic Gold Medalist (Soccer) suffered from Aortic Valve Defect. Well, as it happens, the Cleveland Clinic has been recently rated the top heart hospital in the nation, and the number two hospital overall. A bicuspid aortic valve (BAV) is an aortic valve that has only two leaflets instead of three. Aortic valve stenosis: Your aortic valve narrows, reducing blood flow through it. A HR limit of 120 will be tough, I would guess. Yes, as the patient grows, so will the aorta.and eventually you get to the traditional >40 mm cutoff where activity restrictions are advised. So you know, this is not uncommon for heart valve surgery patients. For some reason I did not receive a notification of your reply, so apologies that I havent thanked you before. Instead, even with continued sports participation, the progression of both valvular and aortic disease is no different from that in the general population. Bicuspid aortic valve (BAV) is the most common form of congenital aortic valve disease, in which the valve has only two leaflets instead of the usual three; it affects up to 2% of the population. There are a multitude of patient-specific circumstances that must be considered when deciding if and when operation is needed. Benefits: long-term durability. These differences of opinion may be legitimate. And he never had any symptoms and played competitive soccer since he was 6. My cardiologist Said to not lift heavy weights. Please help me . Bicuspid aortic valve (BAV) is a heart problem present at birth and the most common congenital cardiac anomaly, with an estimated incidence of 0.5 percent to percent in the general population. Perhaps a cardiac surgeon would be able to provide even more detailed information about things like various options for operation that might be applicable in your case as well as thoughts about when operation should be performed. There have been reports of lingering effects (decreased function of the left or right ventricles) for several days after marathon runs. No other issues. Thank you for your expert opinion. Click to share on Twitter (Opens in new window), Click to share on Facebook (Opens in new window). I had it replaced in 2014 and am now 16. I otherwise feel very healthy, other than (I think) normal slowing down that comes with age. ODonnell, now 54, said her heart attack began after she helped an enormous woman struggling to get out of her car in a parking lot. What a great resource! In Jan 2016 My son was seen by the cardiologist and had some changes on his echo and the cardiologist said hey had mild progression of the aortic regurgitation( moderate to severe) with preserved LV function. When he was 7 we noticed his heart racing at age 11 his bicuspid aortic valve was diagnosed We have been told his valve is at the top of the normal size chart. (I am on a low dose beta blocker) EKG and echocardiogram were done showing BAVD. 1) What kind of sports are recommend to me according to my situation? Im highly considering this option, after 4 months of research and appointments with doctors. That said, the recommendations dont address WHEN that screening should occur. Normal function of cardiac valves Although bicuspid aortic valves can occur . As chemist mostly works in a lab not in the field. I dont know what to do .. I ran a 1/2 marathon 4 months after my surgery and have been since training for the Philly FULL marathon, which is tomorrow. When I had my valve replaced I was told that it would have a 20 year ish life but I think it should exceed that. Check out Anthony DiLemmes blog, Anthonys Heart Valve Replacement Saga. My 28, got a BAV with mild stenosis and a aortic root measuring 40mm. She's currently spreading the word about the AHA's partnership with CVS' MinuteClinics for free heart health screenings every Thursday in February. 3. Its conceivable that an echocardiogram a week afterwards could be abnormal simply because of the race. We just dont know. Doing nothing wont be great for my heart and wont extend my life neither probably.. No aortic root dialation. Surgeon Q&A: What is TAVR Valve-in-Valve? Website designed by Gatorworks. You have a good understanding of the issues. "I Googled 'womens' heart attack symptoms,' " her blog post continued. Our only tool to keep track of aortic enlargement is repeated measurements with CT or echo. I know it can be frustrating when you get conflicting opinions regarding the safety of exercise. Aside from the problems with aortic valve stenosis or regurgitation or with enlargement of the aorta, individuals with BAV can also suddenly develop the problem of aortic dissection. "I had many of them, but I thought, 'Nah.' My cardiologist (whom I trust) said to keep working out like I always have (good news for me). There is recent interest and experience with aortic valve repairinstead of replacementfor patients with BAV. PDF Bicuspid aortic valve: Basics and beyond - Cleveland Clinic Journal Of You would never know meeting these celebrities that they had a CHD. March 15, 2023. Perhaps that info will give you some basis for discussion with your cardiologist and surgeon regarding the type of valve that is used for your re-replacement. His cardiologist said he cant play. Did you run? The pertinent questions for your cardiologist is whether there is any stenosis (narrowing) or regurgitation (leakage) of the aortic valve and whether the size (diameter) of the nearby aorta is normal. I did cardio training 3 times a week and weight training twice a week for 60 years. In your experience, can patients with BAV go a lifetime without having AVR? Enlargement of the left ventricle can be an indication that the heart suffers from the aortic regurgitation, even if the regurgitation doesnt produce symptoms like shortness of breath. Follow up for development of these functional lesions is indicated. I have completed two marathons. Sometimes my cardiologist says there is minimal change and he thinks my aorta had slightly enlarged by 1-2mm. Bicuspid aortic valves are more common in men, but also affect women. Sometimes patients with mechanical aortic valves report that they lose a bit of their top-end athletic performance. Im 37 years old male, live in Croatia, 191 cm, 94 kg, very athletic, practicing various sports my whole lifetime. is my lack of top end performance indicative of someone with BAV & aortic coarctation? To me, you know your own body and what you can manage whilst straining as little as possible. ), What do you think? Dear Dr. Creswell, This was 7 months ago. Thanks very much. Athletes with mechanical or bioprosthetic heart valves may participate in low and moderate intensity sports, Athletes who are taking blood-thinning medications should avoid sports where bodily injury, with potentially life-threatening bleeding, might occur. Im a 33 yro female, diagnosed with BAV. Bicuspid aortic valve (BAV) and congenital aortic stenosis are two types of heart defects that may be present at birth. Willie Moses My son will seek a repair when his conditions deteriorate. BAV was diagnosed in 196 newborns (prevalence, 0.77%), with a male-female ratio of 2.1:1. host, 76, suffered a mild heart attack in 2012. I used to do quite some running 10 years ago (still at amateur level), I was doing lots of 10k and 20k and even I managed a marathon in 3h:26min (but at that time I didnt know about the BAV). I love running. Thank you for the blog that addresses the athletes point of view, and feelings. Consensus guidelines are developed to be broadly applicable, but the guidelines may not be applicable in a given athlete patients circumstance. In late March, Schwarzenegger was heavily involved in a chess tournament with his donkey Lulu. May 11, 2010 -- Barbara Walters said on Monday that her upcoming heart surgery, a procedure known as an aortic valve replacement, will hopefully correct a problem of which . . My exercise is limited to 30 minutes of moderate carido, with no weights. Im not sure I have all the answers from afar. I see my cardiologist the end of May. However, my surgeon told me that he could fit a tissue valve and so would not need to be on warfarin. There is a readable section related to BAV. Up until this time shes played volleyball, basketball and has even run track in elementary. Ever since undergoing open heart surgery in 2010 for her surprise diagnosis of heart disease, Jones has worked as a national ambassador for the American . Dublin teen to compete in Irish Dancing World Championships after heart I do not do any kind of sport and I want to have healthy life at make sure my situation not getting worse and I weight 90 kg. Thanks for the article! Will I need surgery? However, I absolutely love being competitive at running, and dont want to jeopardize that either. Context Bicuspid aortic valve is the most common congenital cardiac anomaly in the adult population. Regards After an echo and an MRI with and without contrast, I found out that I have a BAV with mild aortic and pulmonic valve regurgitation. I certainly know runners, cyclists, and triathletes in that circumstance who are active and doing well. BAVD is a malformation of the aortic valve present at birth that leaves you with two flaps instead of three, tripping up blood flow to the aorta. Hi, my name is Hector and I am 34 years old. Normally, your aortic valve has three cusps that regulate blood flow from your heart to your aorta. Jeffrey Howell didn't know he was born with a bicuspid aortic valve until December 2015. "Weve gotten a lot closer and weve learned each other on a whole different, deeper level, she told PEOPLE in 2015. What are my chances of being able to go back to marathon running after surgery? Functionally bicuspid aortic valve (type 1). Do you think I should slow down a little bit? Maybe you can help me with some questions. Bicuspid Aortic Valve: Diagnosis, Treatment, and Outlook - Healthline Thanks for the very insightful post, and for taking the time to reply to everyone here. Athletes with BAV who have no stenosis or regurgitation of the aortic valve AND have no enlargement of the nearby aorta may participate fully in their sports. I cant do that justice here. The thing that keeps me sane is that I can jump on a treadmill or go play basketball for a few hours and feel relatively normal. I am 26 yera old , I have aortic aneurisem. However, my most recent scan in October revealed all Stenosis and LV thickening had gone completely (Doctor said this was a very positive result perhaps due to excercise and medication). I realise that I will eventually need the valve replaced again and just hope that things go as well next time. 1) Son has to stop football training as well as any physical activity, even at school (P.E. Have been told to keep away from exercises that strain me, ie heavy weights. Reply. I dont think theres a way to predict the future in this circumstance. Regarding the PEARS, the main concern is about the possibility that the aorta dissects even in a controlled measure (lets say 4.5cm). Be specific. Most probably not pericarditis cause I had it once so I know that pain type, but again, maybe its some other type. Thank you for your time Dr.! It is believed that Schwarzenegger had a bicuspid aortic valve which led to a Ross Procedure operation performed in 1997. I was diagnosed age 4 and am now 35. After his procedure, Arnold posted the picture above with the following statement, "Thanks to the team at Cleveland Clinic, I have a new aortic valve to go along with my new pulmonary valve from my last surgery. Hope to hear back soon. I dont believe this has been well studied. However, this is not always the case. Thats about as specific as he got. Many endurance athletes are able to return to their sports after operation for BAV. Given that risk, the current American guidelines recommend screening those children with echocardiogram to identify affected children. Theres no reason to not be CPR certified.. For many patients, I recommend no heavy lifting (>10 pounds) for the first month after conventional heart surgery. Ive not found any programs for evaluating repaired athletes unless something exist with a physiologist research lab. Bicuspid aortic valve (BAV) is a genetic condition that causes the aortic valve to have two leaflets instead of three. Ed Helms - Actor - Undisclosed CHD. Im not sure theres enough information at hand to offer sound advice. Think to report back to let us know how things go for you, personally. My last CT scan in November showed a change from 4.3 (May) to 4.5 (November) however I was only given these results yesterday. Business, Economics, and Finance. The HAART 200 is an innovative device that helps in the repair of BAV, allowing patients to avoid aortic valve replacement. I was concerned about his cough last weekend so I was assessing his lungs with my stethoscope when I heard a very pronounced diastolic murmur at his 3rd ICS. Celebrities with Heart Valve Disease | Wonder After that, most patients can gradually return to activities that put stress on the sternum and upper extremities. I had a good childhood being very active in sports and physical activity, I had just had to watch out for contact due to warfarin. I asked my surgeon and also the echocardiographist about my sports performance after full recovery, about 6 months after the surgery. I have a 15 year old son with a BAV, Aortic stenosis, Noderate regurgitation and dilatation of his ascending aorta. I had AVR exactly 1 year ago to the date. Chris Pratt to Marry into the Kennedy Family. Am I crazy? no tiredness, no dizziness, etc. Celebrities with Bicuspid Aortic Valve - Diseasemaps You might be wondering, with no disrespect to the great people of Cleveland, why Schwarzenegger, who surely has access to the finest hospitals under the sun, would choose to have surgery there. The Best Amazon Presidents' Day Deals of 2023. I have appointment with a cardiologist on Friday but in the meantime i would like to know weather in case of surgery a replacement of the valve is definitely necessary or my condition still allows some options for a surgery without replacement. Males are affected 3:1 compared to females. Again, this is a topic that is not yet well-researched. Defects can involve the walls or valves of the heart, or they may affect the arteries and veins near the heart. That is someones life.. My name became public 25 years ago this week. Arnold Schwarzenegger was born with a bicuspid aortic valve, in which the aortic valve has only two leaflets, instead of the typical three. I used to do HIIT and moderate to heavy weight 5 days a week before my physical complications. Hi Larry, Thanks for sharing your experience, Randy. I asked her about surgery. If untreated, it can lead to blocked blood flow. And what would moderate weight lifting be defined as? New guidelines from 2015 are in accord with your doctors recommendations about vigorous exercise as well as periodic imaging to measure the aorta. Bicuspid aortic valve (BAV) disease is the most common congenital heart defect, as it affects 1.3% of the adult general population . Now, five months after surgery Im gradually returning to sport with 5km runs and kettlebell routine, push ups and pull ups (still feeling pressure in breast bone) no heavy lifting. Brave Dublin teen Sinead fights back from heart surgery to make beloved Barbara Walters Prepares for Heart Surgery - ABC News Consult your doctor to see if there are any restrictions that would be specific to your case. Hello dear doctor. Bicuspid Aortic Disease | Cedars-Sinai Good TAVI Results Seen in Bicuspid Aortic Stenosis: TVT Registry - TCTMD http://www.24hourgym.us. We were to see them in 3 months. Bicuspid Aortic Valve | Circulation Your suggestion about a 2nd opinion is a good one. The American College of Cardiology (ACC) in conjunction with the American Heart Association (AHA) has issued guidelines for the evaluation, monitoring, and treatment of individuals with BAV: In my opinion, these are useful guidelines for athletes and non-athletes, alike. Sory but I dont speak very vell english. From afar, its hard to know what might be responsible for your symptoms. A 2nd opinion might help by bringing another set of eyes and ears to your problem. Do you have any info or recommendations about this? At approximately three months I became very ill and was diagnosed with prosthetic valve endocarditis. I think hes amazed by what I have described for my workouts of 65+ mile rides several times a week. He is on meds to slow it down. 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And of course the problem occurs in everyday, recreational athletes, too. No stenosis, no calcification. Its probably not possible to have too much information as you think about your situation. Could you please give me an insight into what else could be causing these chronic episodes of shortness of breathe, lightheadedness and off-on chest pains. Review of the clinical records of 152 patients aged 20 years and older found to have a bicuspid aortic valve at autopsy revealed aortic stenosis in only 28 percent. It was her death that prompted me to get checked out. Depending upon the size of the prosthetic valve, there is so e built-in obstruction to blood flow that is e aggregated during exercise. Thats important to keep in mind. A week after he made the varsity team as a freshman he was told by the doctor he couldnt play. BAV is the most common cause of heart disease present at birth and affects approximately 1.3% of adults. March 7, 2023, Rob Riley Bicuspid aortic valve: Basics and beyond | Cleveland Clinic Journal of I eat relatively well, but sometimes having those pizzas and burgers late at night I had to change that.. Your situation is complicated.and it wont be possible to give a complete answer here without additional information. Prescriptions for safe exercise will need to be carefully tailored to your particulars. Therefore, people . There are many causes of light-headedness and chest discomfort that are not related to the heart. Many athletes with bicuspid aortic valve (BAV) may continue to participate in their sports.provided there are no other problems, either with the aortic valve or nearby aorta. When you start seeing changes with regurgitation does it progress quickly? Transcatheter Aortic Valve Replacement in Bicuspid Aortic Valve Stories of Bicuspid Aortic Valve. Have tried to get a personal trainer that specialises in all things heart related here in the UK but there don`t seem to be any around despite searching. No changes in regurgitation status (aortic regurgitation LVOT 19%); I cant imagine life without activity, but Im not fool to risk my life, not any more anyway :). I had to take time off gym, when I returned I only did light weights and only walking on the 4x a wk and the same issues where still there. Bicuspid Aortic Valve - Medscape Thanks in advance. While the defective valve may be easy to see, the defect also causes changes in the tissues of the aorta and the heart. In 1997, Dr. Starnes led a team of three surgeons who replaced the aortic valve in then-actor Arnold Schwarzeneggers heart. Thanks for sharing an update. While it was anticipated that a minimally invasive, transcather device would be used during the procedure, a surgical valve was ultimately used during an open-heart procedure using a median sternotomy.